The National TBI Registry Coalition (NTRC) announces its official launch as the coalition aligns several leading nonprofit and corporate organizations that have joined forces on this project, according to a news release.

The goal of the coalition is to collectively advocate for the federal government to develop a national registry of individuals living with a traumatic brain injury. Once created, the registry could assist individuals and families with surveillance and prevention opportunities as well as provide easily accessible information about new therapies and services to address TBI. Additionally, NTRC member organizations are working together to promote public awareness about individuals and caregivers impacted by TBI.

Current NTRC member organizations include Abbott, the American College of Radiology (ACR), the American Congress of Rehabilitation Medicine (ACRM),the International Brain Injury Association (IBIA), the National Football League Players Association (NFLPA), the North American Brain Injury Society (NABIS), Philips, and SanBio.

“Developing a national TBI registry is critical to improving the lives of the millions of people and families affected by traumatic brain injuries. Accurate and timely information about the numbers and needs of persons with TBI must be accessible by Americans and their families, healthcare providers, researchers, public policymakers, and advocates.”

— Dr David Arciniegas, Chairman and CEO of the International Brain Injury Association and Co-Chair of the NTRC Steering Committee

“We have seen the impact of TBI on both the patient and the caregiver in our own research efforts, and we understand the intrinsic value of a national TBI registry. It is important to create a public-private partnership that can help advocate for this very worthy cause.”

— Dhiraj Pisal, Innovation Leader at Philips and Co-Chair of the NTRC Steering Committee

“Research has demonstrated that individuals living with a TBI experience a range of physical, psychological and sensory symptoms that greatly impact their quality of life. These individuals need various types of support, and the development of a national TBI registry will help to improve the lives of people in the United States living with a TBI.”

— Keita Mori, Chairman of SanBio and Secretary of the NTRC Steering Committee

[Source(s): National TBI Registry Coalition, PR Newswire]