Online arthritis education source CreakyJoints, in collaboration with the University of Alabama at Birmingham, has created the mobile app ArthritisPower as a patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions.
The app was designed to help enable patients to track their symptoms and treatments, while simultaneously participating in arthritis research.
In the past, we were studied as subjects. With ArthritisPower, we can be studied as people,” says Seth Ginsberg, president and co-founder of CreakyJoints and the Global Healthy Living Foundation (GHLF), in a media release. “ArthritisPower enables patients to drive research priorities, while also giving them a tool to proactively manage and track their own disease.”
Features of the mobile app include symptoms tracking, advanced reporting, symptoms journal, messaging, social sharing, and research consent.
“The ArthritisPower registry is part of the interconnected national PCORnet collaboration of patient groups, registries and health systems. That means that as ArthritisPower grows, researchers can access specific data from our network and connect that information with data from other PCORnet networks, so that larger health questions can be asked and information can be utilized across patient populations,” says Jeffrey Curtis, MD, MS, MPH, William J. Koopman Endowed Professor in Rheumatology and Immunology at the University of Alabama at Birmingham (UAB), Division of Clinical Immunology and Rheumatology, in the release.
CreakyJoints is part of the Global Healthy Living Foundation.
[Source(s): CreakyJoints, Business Wire]
