The Michael J. Fox Foundation for Parkinson’s Research (MJFF) now offers “Deep Brain Stimulation and Parkinson’s — From Decision-making to Daily Life with the Device.”
A webinar with Parkinson’s experts and community members featured within the guide takes place Thursday, June 17, at 12 p.m. ET.
The new resource educates patients and care partners about deep brain stimulation (DBS) surgery as a treatment option to help manage symptoms, provides practical tips for thinking about, undergoing and living with DBS, includes perspectives and voices from the patient and family community; and shares the latest research and DBS devices available, a media release from MJFF explains.
Answers Questions About DBS
The resource was written by MJFF Senior Vice President of Medical Communications and movement disorder specialist Rachel Dolhun, MD. The guide, medically reviewed by leading Parkinson’s physicians and DBS experts, was designed to include personal reflections and anecdotes from families who experienced DBS. In addition, the Foundation sourced common questions, themes, and tips on DBS through MJFF’s social channels and its diverse community of people and families living with PD.
“Some of the most common questions from patients and families — whether they’ve been recently diagnosed or have lived with Parkinson’s for many years — are around DBS. The goal of this guide is to provide information about the DBS journey, everything from thinking about the treatment option to having the procedure and beyond. And ultimately to empower people and families to learn more, ask questions, or start conversations about this treatment option.”
— Rachel Dolhun, MD
Patients and loved ones can use this 22-page guide to:
- Begin learning about DBS as a treatment option and whether it’s right for them, and the symptoms it may or may not help;
- Prepare practical questions to discuss with your doctor and loved ones before DBS surgery, during surgery and life after;
- Assess general guidelines and tips for practicing regular activities while living with DBS;
- Provide information on the latest devices available and ongoing research.
For more information and to download the guide, visit The Michael J. Fox Foundation for Parkinson’s Research. A webinar, featuring Parkinson’s experts and community members featured within the guide, also will be available on Thursday, June 17 at 12 p.m. ET. Register for the free webinar here.
[Source(s): The Michael J. Fox Foundation for Parkinson’s Research, PR Newswire]
Fox Foundation Funds Parkinson’s Smell Test
Michael J. Fox Foundation Grant Extends The California Parkinson’s Disease Registry
Parkinson’s Podcast Relaunches at Michael J. Fox Foundation